2025 EXPERT SPEAKERS

Adam Clark

Director of Foundation Operations

Emily Whitehead Foundation

Amy Corrao

Senior Director, US & Worldwide Portfolio Strategy, Cell Therapy

Bristol Myers Squibb

Behtash Bahador

Director Health Literacy

Center For Information & Study on Clinical Research Participation

Christine Schlegel Brown

Associate Director, Patient Partnership

Astellas Pharma

Cybele Gouverneur

Director, Global Patient Advocacy

BridgeBio Pharma, Inc.

Desiree Wienand

National Director - Corporate Engagement

Lupus Foundation of America

Erin Frey

Senior Director, State Government Affairs

Ultragenyx Pharmaceutical Inc.

Kathleen O’Sullivan-Fortin

Directors - Board, Treasurer & General Counsel

ALD Connect

Laura Bermingham

Program Director

SLC6A1 Connect

Lisa Ward

Co-Founder

Tough2gether Foundation

Marcelyne Joseney-Antoine

Clinical Operations & Hematology Asset Lead

Beam Therapeutics

Mary Rohrer

Director - Patient Recruitment & Retention

BridgeBio Pharma, Inc.

Michael Sherman

Principal

Sherman Health Systems

Pat Furlong

Founding President & Chief Executive Officer

Parent Project Muscular Dystrophy

Rohita Sharma

Global Senior Director - Global Strategic Alliances, Patient Insights, Solutions, Rare Diseases, Patient Experience & Medical Af

Alexion Pharmaceuticals

Wendy Erler

Senior Vice President - Patient Affairs

Sarepta Therapeutics

FULL EVENT GUIDE
DAY ONE
DAY TWO