8:55 am Chair’s Opening Remarks
Integrating Methods for Early Patient Participation to Optimize for a Patient-Therapy Fit
9:00 am Fireside Chat: Addressing the Practical Needs of Patients During Long-Term Follow Ups to Ensure Patient Retention
Synopsis
- Learning from patient organization leaders on overlooked challenges for consistent regular check-ups to highlight areas of improvement in the industry’s follow-up strategy.
- Suggesting new and improved strategies that incorporates the needs of patients within reason to bring alignment to patient organizations and patient engagement.
- Showcase experiences of good-practice support during long-term follow-ups to confirm the applicability of these new strategies.
Investigating New Strategies Using Patient Voices to Increase Therapeutic Access
10:00 am Parent Interview Session: Exploring How Patients Decide on Joining Cell & Gene Clinical Trials to Optimize for Better Decision-Making Tools
Synopsis
- Understanding a parent’s thought-process when deciding whether her son should join a clinical trial to identify where industry can provide valuable support
- Critiquing the industry’s weakness within there shared decision-making strategy to elevate the standards of support to patients considering clinical trials
- Suggesting patient focused feedback for closer patient partnership to help elevate the anxiety of joining a clinical trial.
10:30 am Morning Refreshment Break & Networking
11:00 am Collaborating with Patient Groups to Tell the Right Story to Payers & Insurance Companies
Synopsis
- Showcasing benefits of early patient engagement to increase accessibility
- Developing improved strategies to integrate patient caregivers’ circumstances into payer discussions
- Introducing new health economic approaches to showcase the holistic importance of access
11:30 am Learning How to Create a Coalition to Cultivate State Policy Change
Synopsis
- Exploring the issues being considered by state legislators and the value of a rare stakeholder coalition to impact access through state legislation
- Evaluating the right people and characteristics to identify coalition members
- Discussing the best practice of creating a cohesive team to create an efficiently working coalition
12:00 pm Lunch Break & Networking
1:00 pm Fireside Chat: Exploring the Value of Patients Voices to Inform the Development Process & Future Probability of Therapeutic Access
Synopsis
- Leveraging the experience of patient advocacy group experiences to optimize therapy access
- Aligning the needs of payers with the experiences of patient groups to satisfy payer high criteria for access
- Understanding the common pitfalls of unsuccessful access requests caused by the lack of patient centricity to avoid poor practice of patient engagement
Evaluating Best Practice for Patient Engagement & Advocacy for Effective & Patient Centric Collaboration
2:00 pm Afternoon Refreshment Break & Networking
2:30 pm Audience Workshop: Spearheading New Approaches in Quantifying Cell & Gene Therapy Patient Engagement to Showcase Patient Engagement’s Critical Value
Synopsis
What is an Audience Workshop? Our brand-new approach to advancing meaningful measurement of cell & gene therapy patient engagement. Join Adam Clark (Emily Whitehead Foundation) as he explores unconventional ROI metrics, followed by a collaborative discussion on the current efforts and future opportunities.
- Identifying the unique challenges of quantifying cell and gene therapy specific patient engagement
- Contrast the different data collection methods between early phase and later phase
- Propose new metrics and ways of presenting data to stakeholders to showcase business impact of patient engagement
3:30 pm Understanding How to Optimize the Collaboration Between Patient Engagement & Clinical Operations to Recruit & Retain Ideal Cohort
Synopsis
- Dealing with the challenge of patient engagement and clinical operations professionals operating in different locations to explore potential resolutions
- Aligning skillset between these two professionals to maximize patient recruitment match and retention
- Collaborating patient engagement and clinical operation professionals to operationalize the task of patient recruitment efficiently